Reply to Please help, my 8 month old has developed a feeding aversion, failure to thrive.

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[quote=Anonymous][quote=Anonymous]Sippy cups are here but I read that for babies with dysphagia they don't have the sucking ability - I am looking at you tube videos to see how how I can encourage/teach baby to drink from it and see if that works.

I am trying to get an appointment now with the ENT dept at childrens but am having a hard time convincing the ped we need to explore this option. I stumbled upon this thread while searching DCUM and posters here said chilren's hospital is bad except for the GI department.

http://www.dcurbanmom.com/jforum/posts/list/135/85190.page#740166

Any recommendations in VA to ENT docs, occupational or speech therapists who could help us explore the dysphagia option greatly appreciated. I think I would need a doctor to prescribe the test.

I read this on one of the threads and it resonated with me:
"I think that you are going to get more help from parents than from experts, sad but true. I hope some of the parents who have been in the trenches will reach out to you at your new address. We spent a lot of time trying to find a doctor who could help, they don't seem to like cases that don't demonstrate their authority/mastery. Or the parents of those cases."
[/quote]

PP here.  My son got his feeding therapy through The Language Experience.  His therapist came up to MoCo from the VA location just to treat my son, so I know they offer this in VA.  I also remember that they treat very young children.  I just wanted to mention that while I didn't read the thread that you are citing, we had a wonderful experience at Children's for a feeding evaluation and also for cardiac and endocrinology issues.  Also, it's been a long time, but we found sippy cups that didn't require sucking.  They worked better if the child could suck, but if not, the liquid would drip out.  It's been so long that I can't even remember what kind they were.  My son couldn't suck until well after his third birthday and he was close to five before he could manage foods of multiple consistencies in his mouth.  Solids came shortly before his sixth birthday.  I used the dropper method mostly to feed him.

My experience was that very few professionals knew what to do with severe eating disorders in young children.  I know I felt very alone in finding resources to treat my child. 
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