Reply to has anyone on here terminated due to a positive T21 result?

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[quote=Anonymous][quote=Anonymous]Having read through the entire thread let me add:

The 90% termination rate is inaccurate.  It is closer to 60%.

[b]The 60% not living past age 4 is inaccurate.[/b]  I am hoping you're not looking here for accurate statistics.  ;)

Ds is not the level of seriousness that people here seem to be viewing it as.  Our daughter walks, talks, is potty trained, makes jokes, likes the play ground and Olivia.  She's not a vegetable.  I have worked with and been around people with Ds who are a variety of ages.  There is a range, as with anything, but I guess I just don't view it like some here seem to.

I have known MANY, MANY people who have children with Ds (Lisa Morguess being one of them).  Many kids do have surgery.  Often the surgery is so specialized that it is really scary but medically not a big deal. Heart surgery these days is very low risk.  As is the intestinal surgery that is often common in kids with Ds.  I have a friend whose son is very complex.  He is the same age as my daughter and is not doing what she's doing.  She feels blessed to have him in her life.  And he is, by far, the exception, not the rule.

EVERY family I know with a child with Ds still vacations.  They still have a vibrant family life.  [/quote]

You are misquoting.  My post said "And then 20% chance that if it made it to term (60% don't), it would die before age 4. "  This states that 60% of fetuses with DS do not make it to term, and 20% who do make it to term do not make it past 4.  And you are right, these numbers are off.  In fact, they are worse (from Medscape):

Approximately 75% of concepti with trisomy 21 die in embryonic or fetal life. Approximately 25-30% of patients with Down syndrome die during the first year of life. The most frequent causes of death are respiratory infections (bronchopneumonia) and congenital heart disease.

And I have seen the 90% termination stat in many different place, what is your source for 60%?
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