Reply to Bruce Willis' family announces he has aphasia

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[quote=Anonymous]PP with the father with Primary Progressive Aphasia. Eventually, as the disease progresses, you become “locked in” - that is you can’t express yourself nor comprehend conversations, nor write. My parent, who was always a sparkling conversationalist with an expansive vocabulary, began to answer direct questions with a simple yes or no. This made my mother very concerned and he was fast tracked for a complete neurological evaluation.

His initial treatment was antidepressants (also diagnosed w depression) and I think a med specifically to attempt to slow the progression and typically for Alzheimer’s patients.

Reflecting further, my father had PPA for a full decade and his progression was apparently atypical; for about 3 years, he was able to perform ADL, drive, garden, read. He was by this time becoming progressively quieter. In order, he lost his ability to read and therefore all interest in reading then speech communication became non conversational and he rapidly lost fluency. Then he could only say yes or no and then he went to a rudimentary sign language indicating agreement or disagreement- then soon after became unable to keep these 2 signs straight.

He then became mute. Then at about this time had to move to skilled nursing home where he lived out his life. He lost ability to ambulate and became bed bound and this was how he lived for 6 months. Absolutely vile and undignified way to die and horrific to witness.

I’ve been since compelled to create a will and medical directive; I’d consider assisted suicide or simply go on a hunger strike should I ever receive a similar diagnosis.

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