Reply to Should a child with an intellectual disability be denied an organ transplant?

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[quote=Anonymous]OK, I am very late to the party on this thread, but one thing I have not yet seen mentioned (although I skipped a few pages in the middle because I couldn't read more eugenics debate) is that some of the media reports suggest that the intellectual disabilities were mentioned because the anti-rejection drugs can cause seizures and brain damage.

Here is my take.

She should not get a kdiney through a non-directed living donation or a cadaver kidney through the waitlist.  This has nothing to do with whether she deserves it or not and everything to do with the anti-rejection drug risk.  I think the hospital is within its rights there to say this is too risky and we can't/won't use limited resources to take such a risk.  Also, from the donor perspective, that would be a tough non-directed donation given the very real risk that the anti-rejection drugs will signficantly harm her.  I think if the parents and other family members want to donate to her, knowing these risks, that is their call and the docs should live with it.  It is their risk to run, I think.

The tougher question is what happens if no family member is a match but they are willing to go into a paired kidney exchange.  That's a hard one, but I would probably come down on the side of the parents having the right to control it then, too.  Everybody in an exchange (except for non-directed donors) knows the deal they are making and it is an eyes wide open kind of choice.

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