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Reply to "I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong "
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[quote=Anonymous]Hi- I usually don't post things on public fora -- and I don't although I don't know how much I can help, someone sent me the link and I will share what i can just in case it's useful... My child had something similar, potentially, this year. She had either Kawasaki, MIS-C, and/or Steven's Johnsons. She presented with a fever that wouldn't go away, as well as a rash. In the end she wound up with acute liver failure and HLH (the latter of which was diagnosed with via a bone marrow biopsy). She and the family all tested negative for COVID and COVID antibodies. She was treated with 4 rounds of IVIG and 3 rounds of plasmapheresis. She's fine, we think now, but sharing above in case it's useful. I'd also really be curious to hear how things evolve for you.[/quote]
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