Reply to 18 y.o. DD's mysterious brain ailment, advice please

Forum Index » Kids With Special Needs and Disabilities

Reply to "18 y.o. DD's mysterious brain ailment, advice please "

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous][quote=Anonymous]Does she have any other physical symptoms?  There are a number of post-viral (sometimes post-bacterial) syndromes.  Could POTS be a possibility?  Can be accompanied by depression/anxiety.

Any family history of autoimmune type illnesses?  This is anecdotal, but two of the three young women I know with Crohn's underwent a period of depression before the actual illness evidenced itself.  Apparently, not so uncommon.

Also, has she been checked for basic deficiencies--Vitamin D, Vitamin B12, low iron?  Would also recommend  thyroid tests.  At the same time, have the doctor run tests for inflammatory markers, CRP and ESR (do both).  If one or both or these are elevated, it could point to an ongoing disorder.  While you are at it do an ANA.  These are all routine tests her doctor should be more than willing to run.

FWIW I had a DD that had a persistently high CRP that the doctors ignored. If it had been investigated when it first showed up, we would have figured out her autoimmune condition three years earlier.[/quote]

Thanks for this post.

New poster here and I hadn't even finished reading all of the replies but when I read that her knee gets swollen that triggered me. I had "lyme or a Lyme similar infection back in 2009. I have never tested positive but I had all the symptoms. Joint pain, brain fog, low energy etc. I also have a knee that was swelling up with fluid about every 3 months. I was treated with antibiotics and got my symptoms almost back to normal but the knee issue still remains. I now see a rheumatologist who prescribes sulfazalazine to keep the joint inflammation under control. I also have attention issues/brain fog.

DD doesn't have any physical symptoms. No tics, OCD, aches, headaches, she sleeps well. That's why this is such a mystery!

Oh, she has one physical symptom: Her knee gets swollen and sore every once in a while, but we thought it was from sports, all of which she's dropped.

She's just SLOWER, mentally. Her short-term memory, focus, organization are not what they were during her first two years of high school, when she got all As and was very sharp and pulled together.

DD had a lot of these tests. All were negative. She had a borderline Lyme test, so was treated with antibiotics for six weeks, with no change whatsoever in her condition (this was a year ago). We took her to a Lyme specialist, who ruled out Lyme pretty definitively. The infectious disease specialist concurred. It's not Lyme, we're pretty certain.

We do have a family history of autoimmune illnesses (lupus, RA), which makes me wonder if a rheumatologist might help?  I'm in completely new territory here.

CRP was normal, vitamins, thyroid, all normal. I have not heard of ESR. I'll ask about that. ANA I think was done and normal too.

Crohn's? No digestive issues whatsoever.

Thanks again for all these posts. They are really helping me think about what could be going on with DD. [/quote][/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics