Reply to 18 y.o. DD's mysterious brain ailment, advice please

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Reply to "18 y.o. DD's mysterious brain ailment, advice please "

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]Sore knee is classic of late stage Lyme as is the brain fog.  I do think you should further pursue this angle. See www.lymedisease.org for more information.  Sometimes knee will swell, sometimes just pain for many.

Lyme testing is less than 50% reliable so you can't really go by the blood test - it's reprehensible but the way it is. [b]Clinical diagnosis by a LLMD is what you'd need but rule out everything else you can first.[/b] If you work with an LLMD you will know pretty quickly once on antibiotics if that's what you are dealing with. There are usually several infections involved by the time you get to late stage. Lyme past the first stage moves throughout the body and suppresses the immune system (like HIV), causes inflammation and exactly the symptoms your DD is describing. Many get a flu like illness in the weeks after bitten and no bullseye. Has she ever complained of a sudden stiff neck? That's another common symptom in kids as is headache(s).[/quote]

Not OP, but what are the things that your ruled out?[/quote]

PP who posted above here.  We ruled out cancer and rheumatoid arthritis for DK but had begged pediatrician for testing several times - I told them DK has some sort of blood infection, DK was getting sick every month with fevers etc. DK had what turn out to be pretty classic physical with some neuro starting (upper body tics) symptoms of Lyme and many symptoms of tick co-infections (breathing etc) OP's daughter (if she had Lyme or tick infections) has more neuro symptoms - depression/brain fog, loss of intellect (some kids lose ability to read! Luckily it comes back with treatment).  OP's daughter went downhill after a virus or infection and it started off something which she hasn't been able to pinpoint but is very real. I hope she can find some answers. Gotta run but will post a doctor's name who may be of help who is a neuro who knows how to deal and figure out neuro stuff - so OP if you are still checking here, look again later today.[/quote]

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