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[quote=Anonymous]I'll preface this by saying that I have a child with a severe motoric disability.

Just heard a few days ago of the fourth child this year that we know who passed away suddenly, a child with severe disabilities.  Basically going to bed at night and not waking up in morning.

I'm not talking about children who were dying or were on life support or had no activities so I hope no one comes back with "It was for the best" or tropes like that.  I'm talking about children going to school, going to camp, children who had friends, activities, vibrant, aware, social beloved children who died suddenly.

It is very hard to cope with this and to explain this to my child.  It is so hard to go to funerals for children and young people.  It is so difficult to see their parents' grief.

And it is difficult to read posts from parents here about how they wish their SN children were not around.  Sorry, but it is.  Each of these deaths terrifies me for my child.

Thank you for being kind or for any words of support.[/quote]

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