Reply to Feeling so blue...How to live with DD's chronic illness?

Forum Index » Kids With Special Needs and Disabilities

Reply to "Feeling so blue...How to live with DD's chronic illness? "

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]OP, your daughter has a chronic medical condition.  It may be lifelong, but every medical condition has remissions and a course that includes good and bad phases. She is in a particularly rough phase right now.  That's very hard.  I'm so sorry.

I agree with the posters who say that, as close as your kids are, the younger child must have a social life that does not include the older child.  Send younger child to camp still if you can, or find an activity.  This is really vital.

It's not selfish to feel that the pleasure has been sucked out of your life.  That's a natural feeling, not a selfish feeling.  Your life has fundamentally changed.  But there are vacations to be taken and you will take vacations as a family.  Renting an apartment at the beach for a week sounds like an option.

It seems to me that you would benefit from joining some Crohn's Disease Support Groups.  Your daughter may not have been diagnosed with Crohn's but many of the tips for how to live in the world with bowel urgency and how to vacation are going to apply.  One thing I have learned is to join a wider network of support.  If there is good support for one aspect of my child's condition in another support community, I go there.  You should do the same.

Many children don't have a diagnosis. It's a hard place to be but it's more common than you would think. It's probably contributing to your depression and keeping you in that limbo place.  Ignore the posters who are quizzing you on her condition.[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics