Reply to Feeling so blue...How to live with DD's chronic illness?

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[quote=Anonymous]Agree you shouldn't make your younger child hostage to the older one.  Try to make her life as normal as possible, and spend some time with her alone doing something she enjoys.

Do date nights occasionally with your DH.  Chronic illness in a child affects the whole family, but you have to try to minimize the damage.

In my experience with chronic illness, first with my oldest and then with my youngest, what really helped was getting a diagnosis and then getting a reasonable treatment plan implemented.  I was relentless in researching and tracking down all kinds of medical paths and probably was not at my social best doing it.  But it paid off.  It can take a long time and sometimes you just have to take a break from it all.  It is very tiring, but no one but you has the same motivation to get your child well.

And it is lonely unless you can find someone else to share experiences with.  Mine was a work colleague who had two kids with chronic illnesses.  We could be excited for each other at the smallest sign of progress in a way no one else would understand.

One of my kids has a chronic GI problem (not like yours) and I understand how terrible they can be--mine was actually pretty housebound for a year.  We lucked into a great doctor at Johns Hopkins and things really turned around.

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