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[quote=Anonymous]OP here.   Wow 16:20 that is a terrible experience.  I'm also glad that you posted because I think that's exactly how my DS would react.   He's prone to panic and if he has no means of escape he'll completely melt down, which sets off as sensory reaction as well.   We have a psychologist, a psychiatrist, and a private school teacher working with him because he's currently not in school.  He managed wonderfully in school with only a 504 for sensory issues until he hit 3rd grade and then the increased social and academic demands just sent him over the edge.    His anxiety is THAT bad and we haven't yet found a medication that helps to make him more amenable to the many, many therapies we have tried (i.e. CBT, play therapy, neurofeedback training, etc.).   We've tried them all, so I was thinking that maybe a center devoted to intense intervention for severe anxiety might be the next step, but I am so much more discerning now about finding actual value-added services that don't make things worse.   He's been in various therapies since he was 5, so we've been doing this a long time.  Whatever we take as the next step really needs to be meaningful support.

We run into difficulty in that the combination of HFA (what would have been PDD-NOS in the past) and severe anxiety makes any one type of therapy fall short.  He doesn't warm up easily to people and exhibits extreme social anxiety and selective mutism as well.  It's difficult for him to be so self-aware of his differences and he exhibits a lot of shame around that.  But, the less he's out in the world with other kids, the worse his anxiety gets.   I know that feeling when a professional just steps back and holds their hands up with a "Can't help you here" or "Not in my skill set."    I've considered Ivymount, but I can't afford 65k a year in any sustainable way and if I tried to pursue a placement in Fairfax County I'd have to put him back in the system that I just took him out of because he had was having panic attacks even walking through the school doors (not to mention the fact that my school's SN support staff was not equipped to deal with the severity of his anxiety).   I honestly feel like we're in a no-man's land when it comes to finding a real course of action.  [/quote]

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