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Kids With Special Needs and Disabilities
Reply to "Wish our therapists would be more realistic"
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[quote=Anonymous][quote=Anonymous]I realize it's their job to advocate/offer services but sometimes I feel really annoyed by the fact that they don't seem to realize our resources aren't infinite. Our OT/speech therapists are both young and I don't know if have children. We take DS for 2 hours of therapy plus 6 hours of ABA per week and spend time weekly coordinating with teachers and other service providers. Outside of therapy we try to do the "homework" and we've done some groups too although I haven't found them that helpful for DS. My frustration is this - every time a therapist adds on another task to the week or suggests some outside activity, they present it as if we absolutely NEED to do it if we really want to help DS. Of course we want to help him but we have other children, work and other life obligations. Not to mention the finances. This week our speech therapist was pushing another social skills group on us. It's almost $400, it's not covered by insurance and it's at a time when our other two kids are napping. Of course I say all these things and then I get the "yes, but I think it would be REALLY good for him." Maybe it will maybe it won't but I'm the parent and I have to balance a lot of competing obligations so when I say we can't why don't they just drop it? Are they going to fund it and come over and take him back and forth? I had a similar conversation the week before about a summer camp that's an hour travel both ways so I'd be spending 4 hours in the car per day (2 driving there and back in the am and 2 in the evening) with two other kids under 3. I'd love to send DS and I've tried to figure out another parent to drive with or some way to get him there but there isn't one and I can't pay a babysitter for 4+ hours a day split up between am/pm so I can drive him. Why does that answer not seem to be enough? Am I the one not being realistic here? - signed a frazzled and frustrated mom![/quote] You are being realistic. And they probably are too. It is their job to help your child - and they are right that all else being equal more therapy and practice will help him. Hear them out, think about it, and then let go of any guilt if you can't make it work. We are all doing the best we can, including the service providers. My DC is older now and we are off the therapy treadmill but we were very diligent about home practice - for both speech and OT - as we hoped it would lesson or reduce the number of years he'd need the help and we'd be shelling out money and copays. [/quote]
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