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[quote=Anonymous]Not sure where this post fits best.....my 2.5 year old is in ICU and it doesn't look like she's going to pull through this time. She's a medically fragile kid with multiple, severe disabilities, so I've been preparing myself for this day (as much as you can) since she was born. She's been hospitalized multiple times since September and we've known for a while that all our theoretical discussions with palliative care were quickly going to become reality.

For those who have been there, what happens after? What advice can you give for the days/weeks/months to come? She will be cremated, and I'm sure eventually we'll have a small ceremony to scatter her ashes, but I'm not ready for that now. What do you do? Our parents are flying here and may not make it in time to be with her when she passes. I don't know what to do with them once they show up. All I can think about now is planning and logistics for the days to come. (Ideally I'd like to just take off and travel a bit but I'm on travel restrictions due to minor complications with my current pregnancy.) Part of me just wants to go home and clean out her stuff, something to do to keep busy, but I know my husband won't be ready. And I'd rather do that alone,  really, not with parents and in laws around.

Just rambling now...not sure how this plays out....thanks.

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