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Reply to "Help for Elderly Parent with Secondary Progressive Multiple Sclerosis? "
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[quote=Anonymous]My mother had very severe MS. You need an aide. Better to find a good one now and help preserve everyone's energy bc things will only become more difficult. My mother went from walking with a cane to bed bound (she could get out with the help of an aide into a very complicated wheelchair for about an hour before becoming too exhausted) within about 5 years. Other than that my best advice is to be kind to yourself, to your mom and to everyone else involved. This is hard stuff. I wish I could remember more but I know there is software that will type what you say. That became something very helpful. Also all sorts of special utensils and cups to make self feeding easier. When it was possible my mom also enjoyed going to 'physical therapy' at a gym that had a lift onto the pool and special trainers. Its not PT in the sense that its really going to bring function back but it was enjoyable to get out of the house. Also…whatever she can do now, do it. If she can go out to eat, eat out with her. If she can do a short vacation, take her. Little things that don't mean that much right now may not be possible in the future but again I think the most important thing is to take it easy on yourself and everyone involved so if this is going to cause stress don't do it. Wishing you both the best![/quote]
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