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[quote=Anonymous]

Yes, I also agree OP that you need to focus on what makes the most sense in helping your son continue to move forward to meet the goals that you and he have set as attainable.  Once he is out of school as I have indicated, you will more than anything become "Case Manager In Chief" and it is very important for you to not be at your wits end emotionally or financially because this will really be the time in the process of transition when the parent does not want to make the son or daughter, especially if they are aware enough, to feel like a burden.  A PITA at times is fine because we all have our moments, but a lifelong burden due to your burnout is not fair.

In many respects your best source of information on what may be out there in services and options for your son is to network and learn what parents of young adults with a similar profile of abilities and needs for support and perhaps specific disability have found to work best.  Perhaps going through disability specific groups can put you in touch or if you are on good terms with a teacher of PH age students, perhaps you could draft a short blurb on the kinds of things you would like to chat about and be pointed in a certain direction on.  There is a Transition Center at George Washington University now that looks like it might have some resources.

We are ten years in on this adventure, and I just learned while our daughter is doing very well on her volunteer job one day a week which is a nice balance to her part-time paid job that the site is likely to have to close in a couple of months due to slow business.  So now back to the search again. For me the most frustrating part is the lack of funding to help make housing opportunities with peers with support available. But I know that being in a smaller, more self contained geographic area that we have a lot going for us than NOVA seems to offer.

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