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Kids With Special Needs and Disabilities
Reply to "Do you have experience with ADHD-1 (inattentive)? "
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[quote=Anonymous][quote=Anonymous]OP here - thanks for responses so far. I so don't want to hear this. Plus my husband thinks I am ridiculous for thinking anything is off. A few reasons why: [b]-She is smart and gets great grades - if she is doing well in school, he doesn't see a problem. -When she wants to focus and get something done - she can (for some reason, racing with her little brother gets her to move quickly, for instance). -She, herself doesn't think there is a problem. Does this change anyone's assessment? [/quote][/b] Hi OP - this is the first PP whose daughter with ADHD inattentive turned out to be an Aspie. Alas, no. DD is so smart she qualified for youth Mensa (if you are in to that sort of thing - I signed her up to bolster her self-confidence which is at an all-time low). She got As and B+s throughout middle school and upper school years, although she did have an IEP once we got the Asperger's diagnosis. I think her I.Q. is 147. She scored a combined 33 on the ACT (but not the writing part - she cannot write). She made honor society at college. But she cannot drive (she drives like Temple Gradin - go rent the movie if you have not seen it), cannot self-regulate at college, cannot get herself to wash her hair, take her meds or go to bed or get up on time. She has little self-awareness (she's probably emotionally about 12 years old) so when younger did not realize there was a problem except that homework took forever. She also would stay in the shower as long as we would let her. I have found some adult Aspies on this site who explained that for them showering is a nightmare because "it's like peeling my skin off when I remove my clothes" then in the shower they said "I don't want to get out because then I have to decide what clothes to put on; often I just put on my old clothes so I don't have to make the decision". Hygiene has become an issue in college - DD is working with a counselor there on the showering issue. For what it's worth, DH thinks the shower is the equivalent of Temple Grandin's "squeeze-box" but that makes sense only if you see the movie. For what it's worth, our pediatrician, like your husband, didn't think there was anything NT off. There clearly was. I wish I had got intervention earlier. Was your child late to potty train? Have GERD or digestive issues? Our pediatrician ignored all of those symptoms too. Only after seeing a ped. endocrinologist did we discover that DD was not making up all the trips to the pott and digestive issues. She had five year old fecalomas inside her, a distended colon, and mega-colon. She will never be normal. I'm posting this not to alarm you. Nothing like this existed when we went through the trauma. My DH didn't even know what Asperger's was when we got the diagnosis. I pray I am very wrong and that all will work out really well for you. BTW we relied on a lot of $$ tutors. Composition and writing will always be a challenge. BTW, check DD's vitamin D levels. There is a brand new study indicating a link between vitamin D deficiency at birth and autism. DD just got at vitamin D test at her college - she scored only 21.5 on the 25(HO) test. 30 to 70 is norm. 100 is high. . I also wish I had gotten her speech intervention. As an adult, it is very apparent. It wasn't when she was younger. Praying for you. I am coming to terms with the fact that my Aspie will probably never be self-sufficient and will be living with me for life after college. It's heartbreaking.[/quote]
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