Reply to Nonverbal autism - PDDNOS

Forum Index » Kids With Special Needs and Disabilities

Reply to "Nonverbal autism - PDDNOS - excessive prompting"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]
OP - I know as a sibling and of divorced parents that your life, too, has been impacted by your brother's disability.  It seems like he is on the move challenged end of Autism, and it may have been a real struggle just to get him to eat on his own, toilet on his own, learn to handle his emotions so as to not be impacting on others etc.  So I guess what I am saying is that you have to give your folks some leeway in saying what they might have/could have done more of.  I say this as a parent of a young adult with much fewer barriers to daily living.

At this age, you are correct to assume that it is unlikely he is going to be interested in learning new skills unless he finds a reason to do. The question asked is very relevant.  Ag age 23, public education has ended so he must be participating in a day program and hopefully one that works with adults with Autism, too.  It would be appropriate to raise your observations with the custodial parent, but again at this point your parents are probably tired and probably just used to the way things are going.  What one might do with him in a day program is hard to say based on the client to staff ratio of support, the intensity of needs of others and frankly the background of support staff.  But maybe if you sat down with the parent who has him most of the time and tried to ask them what they would like to see your brother learn to do the most that one goal could be brought to the attention of the day program person and developed as a reasonable goal to work on.

For your part, I do think it is appropriate to ask your parents what their plans are for your brother.  If they have the funds for his future care in a residential setting great, but if they are like most of us, the cost is prohibitive.  Ask if he has a Developmental Disabilities Waiver or an Intellectual Disability Waiver because the ID waiver is the one that fully funds any services including 24/7 support.  I do think with even a DD Waiver, a person might also be hired a certain amount of time to work with your brother on goals as you have mentioned as another option.  You need to speak up for yourself and your life ahead as to what you could and could not do for you sibling so there are no misconceptions on your parent's part.   As you are seeing there is so much emphasis and funding placed on the first one-third of life and so little available in terms of funding and appropriate programs for those individuals who need support for early 20s to now easily 60s AND might I add their parents.

[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics