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[quote=Anonymous]My younger brother has NV PDDNOS. He is 23 yrs and has not spoken since he was 2-3 years old. He only very rarely initiates communication (example - handing you something he wants).

He has a voice box but he never initiates using it. If you stick it in front of him, he will press something (I.e; I want McDonalds) but I think he usually does it because you are putting it in front of him. He virtually never brings the voice box to you and presses something of his own accord.

Initiation is a big problem for him in general. For the past few years he has required prompting for everything. He will not take a bite of food until you look at him and give him permission. He will not use the toilet or do anything without external prompting. It is exhausting!

Recently he will refuse to get out of the car when going places, which will sabotage my family's plans. He appears to be growing more and more insular as he gets older. I don't see him making improvements, I see him regressing.

Both of my parents (divorced) have taken the attitude of catering to him and not challenging him. I feel this attitude has created this current situation where everyone is at his mercy and he expects us to figure out what he wants. I don't think he was challenged enough as a kid to learn and grow, so he has gone backwards instead. It's really disheartening.

I know he is smart and capable of initiating on his own, but he never does. I'd like to at least see him stop requiring prompting for everything.

Does anyone have experience with this?

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