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Kids With Special Needs and Disabilities
Reply to "Russel Silver Syndrome"
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[quote=Anonymous]We have also seen Dr. Rosenbaum at Childrens. He is excellent. I do want to say that if your child actually has a diagnosis, you could consider that a blessing. Those of us who have children with a genetic disorder without a diagnosis have no information about the future for our child. We joined http://www.rarechromo.org/html/home.asp to find out what other people who have children with the type of genetic disorder our child has have been thru. Although our child is unique, in that no one has registered having the same genetic disorder, we can get some possible issues from others who have children with a close by chromosome abnormality. So if anyone has a child with a rare chromosome disorder which has no name, rarechromo.org is the place to start to help yourself and child. This organization publishes some excellent pamphlets which we used as a blueprint on having all possible issues checked by myriads of doctors. [/quote]
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