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Kids With Special Needs and Disabilities
Reply to "Russel Silver Syndrome"
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[quote=Anonymous]Pp with IUGR kiddo here. For genetics we had to work with Walter Reed as Tricare wouldn't approve it externally (all else was done with Children's except therapy and developmental ped was elsewhere). They did a microarray that would look at most things, but nothing came up. Reflux was also a HUGE deal for ds and still is. The Prevacid solutabs helped a ton and even at 4 he still needs them. He never could latch well and so I pumped BM the entire time until a little over a year. At one point we tried formula but it just seemed to make his reflux worse. When he got off BM we went straight to pediasure at a GI's rec and he still has two per day. He finally started being easier with food at around 3.5 years old. It's like a switch went off. [/quote]
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