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Kids With Special Needs and Disabilities
Reply to "Russel Silver Syndrome"
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[quote=Anonymous]My son was born with IUGR and RSS was on the table for a while. We went through all tests with no reasons for his IUGR found, and ultimately I think it was something to do with my body during pregnancy. But it took years for all tests, therapies, etc... Doctors are always looking for a diagnosis but the truth is that there is so much they don't know about iUGR and it is a result of MANY different causes that can be genetic or environmental, similar to low muscle tone (which my son also has mildly). We didn't achieve catch up growth until my son was 18 months old when we started employing distraction techniques (toddler shows on tv, lap top) to get him to eat. Once we did that, he caught up significantly from <1% weight to 30% at 24 months and where he still sits now at 4 yrs old. And his height went from 1st at birth (adjusted) to 65th (only after we got him to eat more with tv--a lifesaver for us). We still do PT and work on social anxiety and some other behaviors, but he is thriving. We never got a true cause. If it is RSS, unless genetics are positive it can take years to figure out. My son had other features they tried to attribute to RSS like the turned pinky, small teeth, etc... Only they ignored that my husband has those same features... Try to not let doctors freak you out too much. [/quote]
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