Reply to Abbasi or Braverman for immunes?

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[quote=Anonymous]I saw Dr Abbasi first a few years ago, went through all the labs through her with AEB and Dr Stricker.  The prescribed Humira plus IVIG and I still miscarried twice.  With her blessing I saw Dr Braverman (mostly since IVIG did not work) and he tried this new drug Neupogen on me.  (That baby is now 2 so this was a few years ago). I did not have to go see him that time since he was able to treat me remotely.

By last March when I was starting to think about baby #2 his policy had changed and I had to go see him for my preconception appointment.  We drove up there for my first appointment which sucked, but subsequent times we took amtrak, which ended up being so much better.

Sounds like his fees are higher now because I paid $2000 for my first trimester monitoring, not $3000.  I recommend seeing him even if it is just for testing.  He does HLA and KIR testing, which AEB and Dr Abbasi won't do.   The HLA ended up telling us a lot and it's important for me to know there is a genetic component because I have 2 daughters now and want to do whatever I can to keep them from going through what I have been through.  If you had a first uneventful pregnancy (male baby?) I especially recommend this.  Two people I know had first born males and subsequent issues due to things uncovered by testing their HLA.

For baby #2, my preconception appointment and ultrasounds at 6w and 12w were covered by my insurance, but I had to pay more than I otherwise would for some labs because he doesn't use labcorp/quest for regular bloodwork.  This is separate from the immunology labs.  At least when you go to see him you don't have to pay additional for someone to take your blood and ship it, which is what I had to do during the course of both pregnancies.

I wouldn't say using Neupogen is "radical" (unconventional, yes) it's been studied in other countries and has been used by Neutropenic women safely for decades.   The NT100 study SG is participating in is a G-CSF derivative so even though they "don't believe" in immune therapies they are doing the study for their patients with failed cycles.  For those with RIF and failed cycles it is something worth looking into, especially because they pay for the meds.[/quote]

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