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[quote=Anonymous]Hard to find this thread amidst all the Ebola posts.

My teenage DD also has gastroparesis.  It totally sucks.  On a good day she throws up ten times, on a bad day it's more like 25.  It was manageable with Zofran until two months ago.  At this point saltines and ginger ale constitute 90 percent of her diet and she has lost 15 pounds.  Sometimes she can keep down Boost or Ensure for some minimum levels of nutrition.

She couldn't go to college and can't work. She also has an autoimmune disease but it can't be treated because throwing up interferes with med absorption.  She won't take reglan because of the risk of tardive dyskinesia (correct choice IMO).  It's a mess.

We've just seen Dr. Antoinette Saddler at GW who seems very promising.  Have also heard good things about her colleague Dr. M. Aamir Ali. It will take at least six weeks to get an appointment unless you can get a doctor to short cut it for you.  Hopkins has two motility experts who are still taking new patients.  It takes about four months to get in, although a doctor referral will get you in earlier.

The previous so-called motility expert we saw at Georgetown told us, "When I have patients with gastroparesis I feel like a neurologist; I can diagnose them but I can't do much to treat them."  Way to give hope to a teenager.

Good luck OP.
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