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Kids With Special Needs and Disabilities
Reply to "how do I get over my own shit to be a good mom to my extremely SN kid?"
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[quote=Anonymous]See what you can do about respite care. She needs lots of attention, but you needing breaks is also important. If her condition is not terminal, start thinking about the long-term maintenance plan - caregivers, equipment needs, etc. if she is as bad as you say, she won't notice if you aren't there all the time. Make sure she has no suffering and no physical discomfort. Keep enough going on around her just in case underneath all that there is someone who knows what's going on. But keep your life going too. I don't have any great wisdom to pass on. You are not a monster for wishing the outcome had been different. I had a decision to make once and I signed the DNR on an unborn child. Situation was saved at the very last minute, but even knowing the child my child became. I'd do it again if I had to. I wish I knew you in real life so you could know you're not alone and to make sure we always stayed in your life. Hugs. [/quote]
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