Reply to Question about why it's advantageous to "get the diagnosis"??

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Reply to "Question about why it's advantageous to "get the diagnosis"??"

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[quote=Anonymous]

Depending on what the disability and challenges are for the child getting the full range of testing done at age six or older, then opens up the ability for one to apply for the Developmental Disabilities Medicaid Waiver or if there is a cognitive impairment the Intellectual Disabilities Medicaid Waiver.  There are long waiting lists for both, BUT especially for "low information" families and if one's child is on Medicaid, once a child is placed on the DD Waiting List or an ID Waiting List (Urgent or Non-Urgent), one can request Targeted Case Management on an as needed basis.  The Case Manager can be a key resource during the years while waiting to help parents perhaps understand the disability more fully, learn about service that one can apply for now and later on in life and even local programs such as therapeutic recreation or summer camps which may come up and offer scholarships or sliding fee scales.  Also, at age 18, one can help the son or daughter then apply as a legal adult "family of one" for key benefits one might need such as Supplemental Security Insurance (SSI) and Medicaid Insurance as an adult as well as job support services through the now called Department of Aging and Rehabilitative Services.

Also, it is my opinion that while a Case Manager does not deal with school issues directly, one might be able to help a parent figure out if there are local resources to learn basic information.  Finally, with the waivers undergoing major reform and the aspect of "emergency" criteria going to be uniform in the future, it only stands to reason that if a Case Manager can get to know a child and the family - over time - one will be able to capably and completely document the emergency on paper or in person than if one just suddenly showed up the first time in with an emergency.  I know most families here are not "low information,"and Case Management is not a cheap service, but it is key to understand that Medicaid will cover this service AND at age 18, even while still a full-time student, it will be time to start to promote the independence of those who are able to learn to work with folks who can help them access services.[/quote]

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