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Kids With Special Needs and Disabilities
Reply to "Desperately need help with toileting issues ...."
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[quote=Anonymous][quote=Anonymous]Yeah, we've seen the gastro folks. There was constipation, but we've ruthlessly eliminated it (pun intended) over the past year. I've been doing the schedule and "rewards" over the past 6-9 months, and it just doesn't work. He stands there and repeats that he doesn't need to go, then it leaks out of him 10 minutes later. The 11:52 poster that says "He will probably urinate most of the time because his bladder is full" is 100% incorrect. He has absolutely no idea that his bladder is full, and very little idea of how to work the muscles/sphincter to empty it. I've seen him pee on the floor a foot away from a toilet, and not even realize he was peeing. If we stand there at the toilet long enough, then some will eventually go into the toilet, but often it's not even a full emptying of the bladder. It's just not a sustainable system -- he needs to learn when it is that he needs to go, and/or how to control the muscles that keep the pee in and/or let it out. I was really hoping that other parents of kids with ASD and/or SPD would have a system that works to train the brains/muscles/neurological system/whatever. I guess I'll soldier on with the timed voiding and meaningless reward system...[/quote] Is it possible that whatever you are doing to eliminate the constipation is interfering with his ability to recognize the sensation (not sure if it could - just an idea)? Our ABA team helped toilet train my son. The process was designed to help him recognize the feeling and be successful, however, the technique sounds very similar to what you are already doing. I'm sure that you have already tried this, but one part of it (which is common across most potty-training programs) was pushing liquids - that was you get a full bladder quicker, and during an intensive teaching time, you can make sure they are sitting when the full bladder happens. Obviously you can't do this forever, but over a short span (a day or two) you could use this to help recognize the sensation since it is more dramatic. Part of the success, though, was due to time. We had tried a year earlier (age 4), and he just really truly wasn't ready, and I don't think he could feel it. A year later (at age 5) he was finally ready and he was (and still is) very successful. If your son is on the younger side (I don't think you have mentioned an age) then it may just be an issue that needs time. My NT 5-year-old also just seems to not know she has to go until the very last second when it's an emergency.[/quote]
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