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Kids With Special Needs and Disabilities
Reply to "Desperately need help with toileting issues ...."
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[quote=Anonymous][quote=Anonymous]Yeah, we've seen the gastro folks. There was constipation, but we've ruthlessly eliminated it (pun intended) over the past year. I've been doing the schedule and "rewards" over the past 6-9 months, and it just doesn't work. He stands there and repeats that he doesn't need to go, then it leaks out of him 10 minutes later. The 11:52 poster that says "He will probably urinate most of the time because his bladder is full" is 100% incorrect. He has absolutely no idea that his bladder is full, and very little idea of how to work the muscles/sphincter to empty it. I've seen him pee on the floor a foot away from a toilet, and not even realize he was peeing. If we stand there at the toilet long enough, then some will eventually go into the toilet, but often it's not even a full emptying of the bladder. It's just not a sustainable system -- he needs to learn when it is that he needs to go, and/or how to control the muscles that keep the pee in and/or let it out. I was really hoping that other parents of kids with ASD and/or SPD would have a system that works to train the brains/muscles/neurological system/whatever. I guess I'll soldier on with the timed voiding and meaningless reward system...[/quote] Did you get a x-ray to make sure it's gone? Also, it can take more than a year for the parts down there to shrink back down to size and the nerves to start working like they are suppose to. You have all my sympathies, truly. It's incredibly frustrating. At one point our pediatrician made us see a neurologist to make sure it wasn't something neurological - Hah! The neurologist basically laughed at me after declaring there was nothing wrong with DS neuro-wise. Put a dry board chart by the toilet. Get your kid to check off scheduled toilet time after he sits on the toilet. At least that will put it on him if he gets wet. Also, I made DS clean up himself if he had an accident and he had skipped "potty time" which for him was a big incentive not to have any accidents and not to skip the potty. [/quote]
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