Reply to How many of you are the prime care taker of your special needs kid?

Forum Index » Kids With Special Needs and Disabilities

Reply to "How many of you are the prime care taker of your special needs kid?"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous]OP here -

Thanks for everyone chiming in.  It's comforting to know other parents have this issue and to hear of ways that they cope.

I agree it is helpful to have a parent build relationships with doctors and specialist.  Someone has to keep track of all the info. to insure the doctors are all on the same page and for me, I can keep most information in my head so I can give brief synopsis vs. rummaging through a stack of papers to get info.

Everyone has their strengths and weaknesses and my DH avoids situations with our daughter when triggers may happen and it was fully predictable that getting blood drawn at the doctor's would be a trigger for her.  It took two nurses and me to hold her still enough to get it done.  What should have been a 30 minute appointment was 90 minutes for her and I could feel the frustration from the staff who were not used to having such problems with a child my daughter's age.  I was shaken and frazzled by the end.  I should plan better in the future and schedule for my DH to be there for my mental support and at least be extra hands on deck if we need it.

After my DH got home from work, I had a much needed break.  I was able to have a drink and read a book in my room for some quiet time without distractions.  PP's ideas of having a trip with friends or even a weekend on my own sounds like heaven and might be what I need to fully recharge my batteries. [/quote]

DH needs to be there -- if not for your daughter, for you.  It's hard enough to do with spousal support -- too draining to do alone.  [/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics