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Reply to "NIH ADHD Study?"

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[quote=Anonymous]We, too, had a great experience with the ADHD study.  We've been doing it about 5 years (DS is in 5th grade and I think we started when he was in K).  Once accepted into the study, we were given every opportunity to opt out of the MRI.  They understand not every one can tolerate it.  It is an important part of the study so we chose to encourage DS to do it.  Amazingly, he did an awesome job.  He wanted headphones instead of ear plugs and that request was quickly accommodated.  He always enjoys seeing the images of his brain afterwards.

I also echo what the PPs have said about the testing, feedback and what a great resource the research team has been.  Initally, DS wasn't on medication.  The staff have never pushed/suggested medication.  I had some very helpful conversations regarding medication and have really appreciated being able to have them.  They're experts in the field and it's nice to have them as a resource.  The reports have also been great.  They've been very helpful in interpreting test results (ie just because my DS scores about the same as an oraguntan does on intelligence tests doesn't mean he's got an intellectual disability) and recommending accommodations/strategies.  It's not so much for me but for our IEP meetings.  It's nothing too specific but it doesn't help provide examples of what could help him.  [/quote]

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