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Kids With Special Needs and Disabilities
Reply to "NIH ADHD Study?"
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[quote=Anonymous]My son has been part of the study for 5 years now. We go back every year for follow-up. If I remember correctly, the first appt once you are accepted, takes almost all day. They will do a gazillion tests on your child and interview the parents in great detail. I think we also had a blood test for DNA and our kid opted for a saliva DNA test. The MRI is a pretty important part of what they are studying so I am not sure you can opt out, but I might be wrong. They will also give you a bunch of questionnaires for all your kid's teachers to fill. At the end of the day you meet with the team and they give you their assessment and talk to you about next steps, resources, school accommodations, etc. I honestly can't remember how long it took to get the written report, maybe 2 weeks. For us it has been a phenomenal experience. The whole team is extremely knowledgeable and they are great with kids and nervous parents. They are also very good with phone calls and answering any question you have at any given time. They do not prescribe meds and do not push for them. They just give you options. We did decide to start meds after their final diagnosis and it has been life changing for our son. He is now 13 and loves going back every year. Ohhh and regarding what the PP said, they do ask us to not take his pill on the day he is tested but that is it. [/quote]
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