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[quote=Anonymous]More great suggestions!  Glad to hear I'm not the only one tiring of all this and wishing for a navigator.  It is actually harder as they get older--I have come to really dislike HIPPAA as it makes it harder for me to get medical records since she's over 18.  It's difficult enough to get her to medical appointments (doesn't drive owing to seizures), and now I have to take her in person just to sign releases. When she was younger I just had to call and records would be faxed over.  I also have gotten lectures from doctors that she has to take more responsibility for her health care; that didn't happen when she was under 18.  It's not that I disagree, but just because someone is over 18 does not mean that they have the perseverance to make the 20 or so calls it can take between doctor's office, insurance company, and radiology center to get an MRI done.  She does have mental health as one of her issues and her psychiatrist is hospital affiliated.  I tried once to get her to a PCP in the hospital system and they offered her a resident.  Didn't think how that made sense for someone with multiple issues, particularly as residents don't tend to stick around so I turned down the offer.  Perhaps I'll try again...[/quote]

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