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[quote=Anonymous]

In our area in Virginia, there is something called Care Connections which helps families who have children with complex medical needs "transition" from children to adult services.  It would seem that your daughter might need a good internist as her PCP who is affiliated with a hospital practice system so that referrals could be made within the actual hospital building to at least keep her from running around to multiple sites in DC.

I would assume that it is also important to consider her future insurance coverage in her mid to late 20s when she could no longer be covered under a family plan in terms of what insurance company she is most likely to work with and whether her health care team would accept it.  This would reduce a major disruption later on in her life.

If mental issues are a part of her health care scene then if it is possible to find a doctor(s) in that realm also associated with the same hospital it would be good.  If it is something like a cancer which requires a lifetime of follow-up then a doctor with that kind of research interest is also a consideration.  In many regards, I do thing "a navigator" for this age group would be a great job for someone to take on.  A friend in the DC area is so tired of being the "go to" person for her young adult daughter - who in many ways is still "a real pain" to deal with and might be more willing to do sensible things if there was a 3rd party.  Right now "Mom" is the one who has the time to make the doctor and insurance co. calls and research care options as daughter does not have a flexible job.....[/quote]

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