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Kids With Special Needs and Disabilities
Reply to "Landau Kleffner"
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[quote=Anonymous][quote=Anonymous]2218 --Your post is what I was looking for! My child also had a very positive reaction to steroids. We are trying to get IVIG but are facing some insurance issues.[/quote] Please keep us posted with your child's progress. I am interested in trying a short course of steroids for my own child because she has markers of brain inflammation. But first we are going to complete the 24 hr EEG because the steroids could mask potential subclinical abnormal brain waves. I'm kind of leery of IVIG myself being that it's blood product. Based on my initial reading, I'd almost prefer to repeat a short course of steroids. I've read other accounts from parents who have repeated steroids with very good success. In once case, the second course nearly recovered the kid. Have you see many negative side effects from steroids? Coincidently, I had a phone consult with my child's autism doctor yesterday and he mentioned an interesting patient who was totally no-verbal a year ago. After a short course of steroids, that boy was talking at an age-matched NT level and was fully caught up and integrated. Clearly, this was a stand out case, but it showcases the fact that our kids can get better with medical intervention.[/quote]
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