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Reply to "Ehlers Danlos Syndrome"
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[quote=Anonymous]PP here. Many people with EDS have uneven autonomic nervous systems, with surges of adrenaline at inappropriate times. That is a problem for me, and the adrenaline both keeps me from getting to sleep (heart racing, body wired, even when mentally I don't feel stressed) and wakes me up with racing heart in the middle of the night. Here's one of Dr Pocinki's speeches on the subject: http://www.ednf.org/images/2013Conference/Presentations/Pocinki_EDNF2013_2slidesS.pdf. Reading it was a lightbulb moment for me because it described exactly what seems to be happening to my body. Sure enough, I had a sleep study that turned out just like the examples in his slides -- an average of 1 mini wakeup for every 3 minutes of sleep. Haven't gotten far enough in the treatment process yet to find out what to DO about this, but the slides linked above give lots of trial-and-error ideas.[/quote]
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