Reply to apraxia of speech--your experiences

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[quote=Anonymous]We noticed issues by about 14-15 months. We had private and EI evaluations at 19 months. We started private speech 1x/wk with a PROMPT certified instructor and EI speech 1x/wk with a therapist who had a fair amount of PROMPT training (but not certified).  Progress at first was extraordinarily slow--I remember working on the word "on" for months. DS has never been formally diagnosed by a dev ped and his private therapist won't officially diagnose but apraxia has always been her working diagnosis. We pay out of pocket for private therapy with no reimbursement. We started the fish oil regimen from The Late Talker around the same time we started therapy, and I did feel like it made a difference in the first year or so. He is off it now because I saw no regression the couple times I pulled him off of it and then put him back on in the last year or so.

DS is nearly 4 now.  His progress has been remarkable. We stopped therapy through EI when he turned 3 because both his EI and private therapist were sure he wouldn't qualify for preschool services for speech. We continue with private therapy, but he is doing so well that we periodically take therapy breaks (like we took the summer off from therapy) because his therapist is so pleased with his progress. She expects that he'll be done with therapy by the time he starts K.

He has always been in a typical daycare/preschool without problems. He does have other issues that are becoming more noticeable as he gets older even though nothing else really showed up when he was younger (sensory issues, issues with fine motor skills, attention issues, some broader motor planning issues, very late toilet training, etc). He started OT this past summer. For those reasons, we're finally seeing a dev ped at KKI next month to get a sort of global opinion on everything and so we can start thinking about what type of school environment will be best for him. He has an older brother who is in 1st grade in private school, and we're not sure private will be a good fit for younger DS. I do expect that younger DS will have learning issues crop up once he is in school because, while we were hopeful in the beginning that we would just deal with the speech issues and just check that box, it has become more and more clear that there are other things going on, and I expect those other things to get more and more noticeable as he enters school.  Older DS has no known issues at this point.[/quote]

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