Reply to Anyone have a high school student with a chronic illness in Faifax schools?

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Reply to "Anyone have a high school student with a chronic illness in Faifax schools?"

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[quote=Anonymous][quote=Anonymous]I was in HS in FCPS with a raging autoimmune disease years ago, so I can commiserate.

How would she do with a modified/shortened day? Or maybe a combination of online and in-school courses?

There is really no easy system to accomodate for hospitalizations, but you may be able to ease the day-to-day. [/quote]

Thing is, she really does not need a modified or shortened day.  When she is well, she's well--and she can go to school like everyone else. The issue is only when she gets sick, and when she does, she tends to miss about a week or two.  And its very hard to say how often that will be--sometimes it is twice during a school year, sometimes is is much more often.  Its so unpredictable....

Even missing a week, its brutal in high school. She comes back to school and she has so much work to make up its almost impossible--and she has missed all of the lectures and everything. And then on top of it, the class is just cruising ahead--and she has to keep up with current work, too.  its not possible.

In Baltimore, they have a very formal program for chronically ill kids, which includes recorded classes and webcams, etc.  I was hoping there was something similar here, or at least supports like that were common in this area for sick kids.

Everyone told me how amazing the schools were here (I guess that means for a non-special needs kid..?.), and I guess I expected how much worse could it be than where we came from, it could only get better...she got basically no help where we came from.  But today, we went for a very informal meeting at the school, and I was looked at so blankly and I thought, oh no.....
Hopefully when we have our more formal meeting with the right person at the school I will get a better feeling.  Today I got very worried, just from the look on the person's face that we met with.  [/quote]

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