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[quote=Anonymous]7:52 back.  In terms of questions for the gastro, mine were of the 'what exactly do these results mean / what is the prognosis for recovery.' We also asked what it would mean to have positive bloodwork but a negative biopsy as our DD's endoscopy looked visually normal, though the biopsy later did confirm celiac with observed damage.  Once the diagnosis was confirmed we asked what that meant (strict GF diet), what the future treatment plan would be (check in at 6 months, then yearly, optional redo of bloodwork at that point), and opinions on how sensitive our child was / how concerned we needed to be about cross contamination (since our child had only mild symptoms her suggestion was to do my best but not to make myself crazy over it.)

As for your son, it's possible to get a false negative (I believe it runs around 10-15%), especially if you're limiting gluten.  At the same time, there are numerous non-celiac reasons folks have trouble with gluten. Our 2nd child also tested negative, and since she has no signs of a gluten sensitivity we're accepting that at face value.  Since your son does have gluten issues it's probably at least worth asking the gastro about it.  And I'd also ask if they ran the total IgA test, as one main cause for false negatives is folks who are IgA deficient. [/quote]

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