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Kids With Special Needs and Disabilities
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[quote=Anonymous]Partly those factors. PANS is a multi-faceted autoimmune disease -- psychiatric and neurological symptoms caused by a wonky immune response to infections. It can be difficult to diagnose and NIH is still investigating effective treatment approaches. Bloodwork showed my child had an underlying inherited immune system deficiency. Doc in CT is an immunologist with expertise in that issue. Latimer is an excellent neurologist, who provided some great insights into the neurological symptoms of my child but we benefitted from someone with expertise in immunology. Docs at MGH in Boston are a psychiatrist and infectious disease specialist. There's also a psychiatrist with PANS expertise at Dupont in DE and in Florida and some treating rheumatologists on the west coast. All have slightly different treatment approaches. We found one that is working for our child and stuck with it. [/quote]
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