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Kids With Special Needs and Disabilities
Reply to "life with DS child"
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[quote=Anonymous]Hello, I don't have an DS child, but I am in regular contact with adults with DS and their families. First want to repeat what has been said in earlier posts, which is that there can be a very wide range within DS. Some have rather mild physical issues, some have many more health complications. All do have physical health complications, and they will ebb and flow throughout the lifetime of the person. Also a very wide range of cognitive function for folks with DS. Some are able to hold down jobs, live outside their home (usually in some kind of assisted group setting, but still a form of independent living) others will not ever be able to do either. The life expectancy of folks with DS had increased tremendously over the years. While this has an obvious benefit, you need to understand that in all likelihood you will pass away before you child with DS does (this was not the case in previous generations). As a result, your older children will have to assume full caretaker responsibilities for this sibling when you are gone. My best wishes for you and your family. I think you are asking very thoughtful, important questions. [/quote]
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