Reply to life with DS child

Forum Index » Kids With Special Needs and Disabilities

Reply to "life with DS child"

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous]We've just received notice that our baby (I'm pregnant) may very likely have DS. We're considering an amnio, but in the meantime trying to gather information about what life with a DS child would mean for our family (6 years, 2 years, and baby due in the summer).

I would really be grateful for the advise of people who have "been there" regarding what it's like. Not stories of love, although I know there are so many, because that's much easier for me to understanding and contemplate.

But more along the lines of

- you can expect to take your child to the doctors' offices X times a week
- counties provide great services in these areas; expect a social worker to go to your child's daycare
- you will need to budget this much for out-of-pocket expenses not covered by insurance
- it's not really realistic for two parents to be working full-time in demanding jobs (or it is!)
- you need to consider what retirement will or won't look like
- and other factual things I am sure I haven't thought of

I know there is a broad range of abilities and medical issues children with DS can have, but I'm having trouble finding information from people/sources who are 1) both informed and 2) operate without (typically & understandably, pro-life) agendas at hand. We're really looking for the "facts," to the extent that we can, about what our life might look like and changes we can expect.

Thanks so much.[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics