Reply to Parents with kids who have social pragmatic communication disorder

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[quote=Anonymous]The name gets changed every time they change the DSM.  First it was pragmatic semantic disorder, then it was PDD-NOS, and now Social Communication Disorder and Pragmatic Communication Disorder.

My DS really fit the Pragmatic Semantic Disorder with a little extra. Then he was PDD-NOS and now either ASD Level 1 or Pragmatic Communication Disorder.

He also fits the standard science/math/engineer geek.  He has low muscle tone and coordination. He had trouble with finding friends K-12. He found his friends in college - all very similar to him.

He needed explicit teaching in the social graces. He needed specific ways and coping skills to deal with unexpected events and disappointments.

What helped him was a weekly “social skills” group from 4th through 12th grade where they addressed issues and trouble shooted things that happened each week. It also came with a monthly parent group, where we learned a few things and trouble shooted problem areas.

He was in Boy Scouts, our faith community’s youth group and in orchestra.  Those activities are social but have adults around to help smooth out the edges.  [/quote]

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