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Reply to "Neuro oncologist not including me in care"
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[quote=Anonymous]Hello! I am also under the care of an oncologist, but for a different cancer. My cancer is quite aggressive and per my oncologist, my case is "complicated." I wonder if your oncologist was talking about a tumor board? Basically, my oncologist will discuss her tricky cases with other oncologists (could include other medical professionals too) - they call it a "tumor board." It can be jarring when my oncologist will say, "I was talking about your case this morning..." and you don't know who she spoke to or what they said. But they do it so they can be sure their recommendations are sound, that they aren't missing anything, etc. I echo PP - have a family member or friend present at all appointments, if possible. I brought a good friend who typed notes during my appointments. I am also not in the DC area anymore - I go to Duke Cancer Center and think they are excellent. I have heard very good things about their Brain Tumor Center. https://tischbraintumorcenter.duke.edu[/quote]
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