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[quote=Anonymous]I’m at MD Anderson for neuro oncology “care”.  I am hearing that there is a team assigned to me, but I do not know all the members of that team and I do know I am not a member of that team. This has caused me extreme anxiety. Extreme.
I do not know who is behind my treatment plan and I do not know how decisions were made, and who made them. I have an arrogant egotistical oncologist, who seems to gatekeep my Medical information.
Today we looked at some notes that he put in our chart from an appointment we had and he is claiming things he discussed with us that he never did discuss with us. I had an appointment with him where I was very direct and very frustrated while trying to get information out of him. He has the personality of someone who sucks the oxygen out of the air.
Every brain tumor is different and it’s a very fluid situation. The treatment of brain tumors is unlike any other tumor in the body. 
I cannot and will not ever accept that. I am not part of my treatment plan. However, I get the since I’m just pissing this oncologist off, and he is defending himself by falsifying his notes in my file. 
Since he is not offering any information or discussing my options, I have gone online and cut and pasted my test results into ChatGPT. Again, every tumor is different. 
I would appreciate any advice anyone could give me to cope with this situation. I do not live in the DC area, but rather a place where there is only one local Neuro oncologist at our local MD Anderson branch. 
Better yet, what would you consider the best neuro-oncology center or Neuro oncology doctor to go to? I am willing to travel anywhere in the United States.[/quote]

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