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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Waiting on EEG (overnight), for focal cortical dysplasia which was found incidentally on an MRI.   We are at Childrens National.  Has your kid had an MRI?[/quote]

We are DC-based normally, but on an overseas assignment for work.  We've had a basic MRI overseas (since the first seizure coincided with a fall and we were trying to determine which came first), but I have questions about the quality.  Given all the complexities with focal epilepsy, we will definitely return back to the States for a diagnosis.

Have you been happy with Children's National so far?  Did they do an epilepsy protocol MRI for you or was it a standard one?[/quote]

So far we have been happy, but I don't have anything to compare it too, unfortunately.  What did the MRI show?  There is an FCD specialist at Childrens, so we felt very lucky that we were close by.  I would say if you have a support system in the DC area, I would come to Childrens.  The FCD Speciaist is in Rockville.[/quote]

Sorry, the standard MRI didn't show anything.  I agree having the support system in DC would be so nice (and just the familiarity).  Thanks for your advice and best of luck to you and your kid in this terrible journey![/quote]

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