Reply to How long? The worst part is the uncertainty

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[quote=Anonymous]It lasted way too long and I say that as someone who loved my father and hated to see him in misery. My mother and brother would tell you he had some rare case of Alzheimers where he just suddenly developed it and rapidly declined. It was clear to me, and I was pushing for an evaluation for years because he was still working and it was causing problems. When he was finally diagnosed, he was middle stage, not early and still it took probably 5 years. The last maybe 4 years he didn't know who we were.

Moving them can be a blessing. The caregiving spouse can decline rapidly dealing with the stress even with 24 hour care in the house. The parent with Alz. can sense the burn-out. If the person rapidly declines after the move, that could be a blessing too, but sometimes they fall apart the first few months and then it's just a better place. Loved ones come and visit and aren't burned out and can just be in the moment with them and the positive mood is contagious. The setting is peaceful with gardens. The lockdown keeps them safe. I hate when people call it a prison. When loved ones put people with dementia is AL who are at risk of elopement, the results can be tragic. [/quote]

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