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Reply to "Has anyone dealt with ongoing digestive issues that no one can figure out?"
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[quote=Anonymous]My LO is 9 months and has had ongoing digestive problems since birth. It's been a nightmare getting anyone to listen to us that this isn't just "normal baby stuff" and we're not just whiny, incompetent parents. I'm so frustrated with the situation and so desperate for an answer. Can anyone sympathize and/or offer experienced advice? I love-love-love-love-love our ped. She is amazing and has been so supportive and understanding, but everyone else has looked at us like we're crazy. We've seen a feeding specialist, a GI, even done alternative therapies to no avail. Our GI basically said he's fine and that maybe we need to have someone come over to teach us how to be parents. Our ped was really mad when she heard this and assured me that we are not imagining this or overreacting. My son has gone to all formula now and seems to be having even more trouble since that. (BFing never worked for us, so I pumped exclusively for a long time, until I just couldn't do it anymore.) For at least a month-and-a-half, he has had bad gas and uncomfortable poops. We thought it was constipation, but the usual treatments didn't help. Then it seemed like he got diarrhea. He poops often and is very uncomfortable. He also seems to not like eating because it makes the gas and poop move, so he's often struggling to drink his bottles. He's up most of the night and screams for hours sometimes. We thought maybe it was teething, but our ped assured us that the extent of things is more than just teething. Overall, his health is pretty good -- fine for growth and weight-gain, looks healthy in exams. This is why the GI felt we were exaggerating. We thought this might all be reflux, so we tried a million different reflux drugs, but none improved things. He's now on Zantac, which helps a little but doesn't solve any of our overall problems. We also tried hypoallergenic and other formulas to no avail. Our ped is doing stool samples and blood tests on him and referred us to Children's for a second GI opinion. I'm grateful that she's taking it seriously, but I'm just so exhausted and stressed. I'm tired of other people with babies who have typical teething and pooping problems looking at me like I'm a whiner and like I can't handle things because they don't understand the extent of the situation, but I don't really want their pity either. I ended up with PPD from all of this and am on meds, and I think my psychiatrist and psychologist think I'm exaggerating things, too, but I'm really not. Yes, he seems like a sweet kid when we are out, and he IS, but he's also not feeling well most of the time. I'm worried about him and don't want anything major to be wrong, yet I also don't want him to be in pain like this. It's so frustrating. Any words of support or advice?[/quote]
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