Reply to Child diagnosed with mild bilateral hearing loss

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Reply to "Child diagnosed with mild bilateral hearing loss - any advice?"

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[quote=Anonymous]I have a child with hearing loss, diagnosed a little younger than your child. I just wanted to say I know it’s really jarring and it was a huge shock for us. Be patient with yourself!!

I agree with trying to get accommodations while you figure out the hearing aids. Seating near the front and FACING FORWARD. My kid was apparently doing a lot of lip reading.

Hearing aids are helpful but they are a big transition. Get in with an Audiologist ASAP and buy the best ones you can afford. During this period where kids are still learning phonics and stuff it’s really crucial.

I would also start the process of educating yourself about hearing loss. There are different kinds and depending on what frequencies the loss is at it can mean they are struggling with slightly different sounds. It’s a marathon not a sprint but unfortunately our experience has not be amazing with any ENTs including the very highly recommended one at Children’s who seemed to have a manic episode during our appointment. I really hope it was just a bad day. But the truth is that it will be helpful if you know more and can ask specific questions. The audiologist is going to be your main contact and the person you spend the most time with but their experience is limited to hearing tests and technology and they are obviously not MDs.

I joined a group on Facebook for parents of kids who wear hearing aids and it’s sort of helpful but also just a lot because everyone has such different experiences and different challenges.

Feel free to post here any time and I will answer if I can. We are a Phonak family and it’s served us well but I hear good things about Oticon too. [/quote]

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