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[quote=Anonymous][quote=Anonymous]OP I hear you! I have been dealing with bad migraines and symptoms of autoimmune issues (joint pain, swelling, fatigue, mysterious rashes that appear out of nowhere) and it's like there is no one who can help me. Then I had a weird incident with my eye where there was no pain but I had these weird vertical lines traveling across my line of vision. I talked to my opthamologist, thinking it might be something with my retina, but he thought it might actually be something called an ocular migraine, which I'd never heard of. So then I went to my neurologist who was also like "I've never heard of that" and also seemed weirdly uninterested in something that seemed like a pretty alarming symptom to me. The migraine med I was on gave my a scary rash (like hives territory, rapidly spreading rash all over my upper body after I took it) so I stopped taking it, but the neurologist said "you don't really have to worry unless your throat starts to close." Meanwhile I have all these other skin issues that seem like they might be autoimmune (weird bumps behind my ears that come and go, random rashes, and these occasional pimples that are like a single cyst of cystic acne, but my dermatologist is like "I've never seen anything like this before). I want to get a new neurologist but waitlists are long and in the meantime I want to see either a rheumatologist or an immunologist (or maybe an allergist?) for the autoimmune stuff but my insurance is being weird and wants a referral and my GP is like *shrug* "I don't know."

Mostly I just feel like no one cares. I go, I make my copay, sometimes they prescribe something, sometimes they don't. When I come back and say "this didn't work" or "this worked but I have this weird side effect" it's like there's no interest in figuring it out.[/quote]

I have been getting migraines since my 20s. They used to be what you read about, pain in one side of head, nausea, vomiting. Even diarrhea. My challenge was to crawl out of bed before the nausea made me throw up my meds.

In my 40s I started getting auras. Typically they were dancing zebralike black and white snakes with some color. Or a shimmering.

Now I get the shimmering or a blurry field of vision. My meds take care of it.  [/quote]

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