Reply to The ethics of price gauging special needs families

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Reply to "The ethics of price gauging special needs families"

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[quote=Anonymous] I'm not sure if this is the right title. I understand professionals deserve to make a lot for their work and special needs children are more work. I know "price gauging" is strong language, but I also have many years of experience with this. I just can't help but comment on what we have been through sometimes even with talented professionals. The cost gets high enough I am unimpressed with what we get. Yes, I know their costs go up too, but I almost wonder how can some sleep at night if they do not follow through with the promised service as the prices skyrocket. Over the years...

-Had an amazing developmental pediatrician who took our insurance. We accepted that he could never get reports done and if we really needed it, we would be calling over and over and emailing and sometimes ignored, but he was fantastic in every other way. Then he went off our insurance. We paid top dollar, and he still could not get the report done, yet his prices kept going up.

-Had a top-notch PT-same thing. We overlooked a lot because she took insurance until she didn't. Prices kept going up, but still ran late, ended early (not just early to meet with parent-sometimes extra early because she had her own appointment), canceled last minute, could not get paperwork we needed done, etc.

-Had an ST who came to our home and was OOP-charged a fortune. Very impressed the first year and saw some decent progress the second, but each year price went up and service went down-no show for appointments or late, frazzled, canceling last minute, etc. Finally had to end services.

-The school system has done decent to lousy educational assessments, but at least they are free! When the reports were decent, I let the people in power know and did everything I could to reinforce. The times we have paid we are talking thousands of dollars I am stunned when I see the wrong name inserted or scores in the summary that do not match the discussion of the same scores. I know it's a business and that money pays for lots of things, but when you take that much money- please proofread.

-Paid out of pocket once for a report with blatant errors where they refused to make corrections! These were factual errors not a parent's subjective opinion.

Have other people experienced this and at what point is there really a lapse in ethics? I'm all for talented people who work for our kids making a good living, but it saddens me when even seemingly good people will take a large sum of money and not give the appropriate quality of service without any remorse.[/quote]

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