Reply to Any cautionary tales about participating in a clinical trial?

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[quote=Anonymous]I have participated in a clinical trial, though not for cancer treatment, and my mom has as well with me as a caregiver. I had a good experience, but was subjected to a lot of bloodwork— TONS of it—, and I say that as a long time blood donor. Also lots of questionnaires and very detailed reporting of every encounter with any kind of provider, any pill or medicine that passed my mouth, etc. Took a Tums after eating spicy food? Exactly what day, what time, what dose? What symptoms were you feeling when you took it? 
My mom was/is in a trial for a treatment trying to prevent cancer. There was no question of whether she got the treatment or a placebo, just a lot of forms to fill out and an annual tracking followup. The big difference in her care is that she has had an extra person — the study nurse— helping schedule appointments, checking in, etc. there is more hand holding and involvement in her care because they are making sure she gets the tests, appts, etc that are needed for the study. 
Good luck with whatever you decide. [/quote]

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